Monday, November 4, 2013

Are you wondering...

Are you wondering how the first few nights with a baby/babies at home went? Pretty well! The boys are doing great and don't cry 24/7, thank goodness! Thomas took the day off work today to help with the transition and got up with me for each feeding last night to help. I am not sure how that will work if he can't always help in the middle of the night but I guess we will figure it out!

Ryan is still so laid back and hardly fusses at all! He is just such a sweet baby! Stokes is definitely more "vocal" but hasn't cried or fussed nearly as much as I thought he would. They both seem pretty content! :)

One concern I have is how much the boys are eating. They were taking their full bottles (50 cc's) in the NICU but don't eat nearly as well here. I talked to some nurses about it at the NICU & will follow up with my pediatrician at our appointment tomorrow. I don't want our babies to lose any of the weight they've worked so hard to put on!

Other updates...William's PDA (hole in his heart) has closed. Awesome! The word from the NICU is that he could possibly be coming home one day this week. He is taking a bottle with every other feeding and once he has done that successfully for 2 days in a row he can move up to all bottles. He will have to take all of his bottles for 2 days & then he'll be ready to come home (assuming he passes his car seat test)! Ryan's MRI, however, was abnormal. His brain is smoother than it should be, without as many wrinkles as a normal brain. They also did MRIs on Stokes & William to compare and those results confirmed that Ryan's brain looks different than his brothers'. It could just be an immature brain or there is also a chance that it is lissencephaly. I won't get into what this disorder is too much, but it causes significant developmental delays and seizures. Very scary! This is, of course, a major concern for Thomas and me. Our neonatologist is going to make an appointment with a neurologist for us and Ryan so we can monitor it closely. He did say that he and one of the neurologists feel like it's immature and not lissencephaly. We may not know if Ryan is ok until he either meets or does not meet developmental milestones. On that note, preemies, like our babies, have adjusted developmental expectations. Since my boys were born 3 months early, they get an extra 3 months to meet goals. So for example, if a full term baby is supposed to start doing something by 6 months, we give our boys up until 9 months to do that same thing before getting worried. By the age of 2 they should be caught up. Isn't it strange to think that our triplets still shouldn't even be born yet?!?! My full term due date was November 24. All things considered they are doing amazingly well! We are so proud of all 3 of them!

The boys at home (Ryan on left, Stokes on right)

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